My name is Sidney Baker. I am a genetic counseling student at The University of Kansas Medical Center. I am reaching out to seek participants for a survey to help better accommodate the Deaf community in healthcare settings. My goal is to shift toward a cultural model of care that views deafness as a unique heritage and linguistic identity rather than a medical model. I aim to gather insights directly from the community to educate genetic counselors on Deafhood, cultural competency, and the history of the community to provide affirming and respectful care.
Please feel free to forward this email to anyone who identifies as Deaf, Hard-of-Hearing, Late-Deafened, or DeafBlind who uses American Sign Language (ASL), Black American Sign Language (BASL), or other visual/tactile communication methods as a preferred form of communication.
There are videos embedded in the survey describing the study, signed in ASL by a Certified Deaf Interpreter. I also have a flyer with more information and a QR code if needed. The survey can also be accessed by the link below: https://redcap.kumc.edu/
Please let me know if you have any questions. Thank you so much and have a great day!
